I'm very happy to be home, wearing my own clothes, sleeping in my own
bed and catching up on my reading. My appetite has been getting better
and I haven't been nauseous so far.
So we visited UCSF yesterday and met with Dr Kaplan and his assistant Mr Leahy. They are going to review my case with a panel if 12 people next week and hopefully consider me for the stem cell program. If all things are good, the earliest the process would start would be late January. It will require 4-6 weeks in the hospital plus some outpatient work. I'm ready to fight and looking forward to getting well. Thank you all for your good vibes, prayers and good wishes.
Here's a short video Sam took this morning.
Untitled from Sam Lewis on Vimeo.
Saturday, December 17, 2011
Thursday, December 15, 2011
Dec 15th - Coming Home!
The discharge paperwork is being worked on at this moment. I am to go down there at 2pm to pick up prescriptions to have filled, and then go back around 6pm to bring Nina home. She is SO excited at the prospect of sleeping in her own bed without nurses poking and prodding her all day and night, without a mattress with a plastic liner under it, and without a "patient pothole" in the middle of it.
Her appetite is still very light and she is still experiencing some nausea which nobody is able to explain as it should have dissipated by now. Nina is thinking and hoping that her own environment, and food that actually looks appealing might help. When we get home and we're on a lower quantity of meds, that might help things out (what do I know?). There may be a med problem causing the nausea.
Tomorrow we have an appointment with Dr Kaplan who is the head of oncology at UCSF. As far as I know it is just an initial consultation, but *I* think he may request Nina check into the hospital right then and there. I could be wrong and I kind of hope they give Nina at least a few days to unwind after being in the hospital for a month. But it's also important to keep moving as the situation is still there and needs to be dealt with as quickly as possible.
Even though the nurses and Dr Reier showed amazing support and compassion for Nina, I'm glad to be moving on to another place.
Her appetite is still very light and she is still experiencing some nausea which nobody is able to explain as it should have dissipated by now. Nina is thinking and hoping that her own environment, and food that actually looks appealing might help. When we get home and we're on a lower quantity of meds, that might help things out (what do I know?). There may be a med problem causing the nausea.
Tomorrow we have an appointment with Dr Kaplan who is the head of oncology at UCSF. As far as I know it is just an initial consultation, but *I* think he may request Nina check into the hospital right then and there. I could be wrong and I kind of hope they give Nina at least a few days to unwind after being in the hospital for a month. But it's also important to keep moving as the situation is still there and needs to be dealt with as quickly as possible.
Even though the nurses and Dr Reier showed amazing support and compassion for Nina, I'm glad to be moving on to another place.
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